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by
Stephen Starin, Ph.D., BCBA
The
internet, like any other large repository of information,
contains a great deal of conflicting information.
However, the internet poses additional problems
in that a vast amount of information is available,
it is quickly accessible, and anyone can publish
information on the internet. Often, this poses
no great threat. After all, it matters little to
most of us if there is great disagreement as to
whether or not Pete Rose should be inducted into
the Baseball Hall of Fame. However, the stakes
are raised (no pun intended) when the issues concern
the care and treatment of our children.
If
you look long enough, you will be confronted with a
seemingly endless amount of contradictory information
regarding the treatment of problem behaviors. Even a
brief examination of information on the internet
reveals a vast amount of information regarding the
treatment of various disorders and problem behaviors.
How do you wade through all this information and make
an informed decision? Some helpful hints are described
below to assist you in this daunting enterprise.
As
you look through information on available treatments,
you will see some that sound to you like they ought
to work and some that sound like they would not
work. You may be strongly tempted to choose the
ones that seem to you like they ought to work.
However, experience tells us that treatments don't
always work just because we think they should (or
want them to). We have found that the best solution
is often not the most obvious one and might even
seem wrong to some people.
We
unabashedly advocate a scientific approach for
evaluating claims about treatment effectiveness.
Unfortunately, too few people rely on the proven
methods of science and make decisions, instead,
based on testimonials, friendly advise, anecdotes,
rumors, good salesmanship, and so on. Some might
argue that we should try anything that may possibly
help, no matter how remote the possibility. Others
argue that these "alternative treatments" can't
do any harm, even if they do not produce the desired
results. Wrong!
It
is true that many of the so-called treatments may
not harm a person directly. However, diverting
attention, even for a brief period of time, away
from treatment methods that have been scientifically
proven to be effective is a disservice and can
have serious consequences. In fact, some researchers
have posited that there is a narrow window of opportunity
in treating certain disorders, after which even
proven methods may fail to produce optimal results.
Therefore, every day that passes without a proven
effective treatment is a day lost. For most persons
with behavioral, and other, disorders time is precious
and should not be wasted.
So,
what should you look for when evaluating a proposed
treatment? Some guidelines are offered below:
- The
treatment should be published in peer-reviewed
journals and should have been replicated in more
that one study. A peer-reviewed journal is a
publication that is dedicated to critically examining
research in a particular field. Before being
published, the research is reviewed by experts
in the particular field to ensure that the authors
claims are valid. The more descriptions of successful
outcomes in peer-reviewed journals, the more
likely it is that the treatment is effective.
These are usually obtained by subscription or
are available in libraries-they are not generally
available at newsstands. Examples include the Journal
of Applied Behavior Analysis, Research
in Developmental Disabilities, and the Analysis
of Verbal Behavior. Newsletters and magazines
such as Psychology Today, Time,
and Scientific American are not peer-reviewed
and should not be used to guide treatment decisions.
Peer-reviewed articles should adhere to the following
guidelines.
- Claims
for successful treatment should include specific,
unambiguous descriptions of the behavior. Objective
definitions allow the claims to be verified by
others. Subjective definitions mean different
things to different people and therefore make
verification of treatment claims nearly impossible.
For instance, cursing could be defined as "socially-inappropriate
behavior" or as "saying 'hell' or 'damn.'" The
former is subjective and would mean different
things to different people whereas the latter
is precise and objective. There would be no question
about whether or not the behavior improved using
the second definition.
- Similarly,
the methods of measuring treatment outcomes should
be described in clear and objective terms. Precise
and objective measurement reduces the bias inherent
in subjective measurement methods. For example,
measuring the number of tantrums that occur each
day is far superior to asking significant others
to "rate the degree of improvement." The
former method minimizes subjectivity and bias
whereas the latter may be affected by a wide
variety of variables other than the behavior
of interest (e.g., having paid for a "treatment" and
therefore should have obtained some results,
the therapist saying how much improvement has
been obtained, becoming "used to" the
behavior, other parents saying their child improved
using this treatment).
- There
should be controls established to minimize the
effects of any factors other that the specific
treatment on the behavior of interest. Our world
constantly changes and many of these changes
affect the behavior in which we are interested.
For example, a child exhibiting a problem behavior
may be given vitamin supplements and the problem
may seem to lessen. Is the vitamin supplement
responsible for the behavior change? Should we
then suggest that vitamin supplements should
be used to control behavior? No. There are many
other factors that could have caused (together
or alone) the change in behavior. The child may
have learned new skills at school, her behavior
analyst may have taught her some alternative
ways of obtaining desired reinforcement, family
problems at home may have been resolved, her
doctor may have successfully treated her for
an allergy, other children may have punished
the problem behavior, her siblings may have reinforced
appropriate behavior, and so on. Clearly, before
claims for treatment success can be made, many
other factors need to be ruled out.
- The
treatment should be described in clear, specific
terms. Vague descriptions of the treatment process
do not allow others to precisely replicate the
treatment and therefore make verification very
difficult. The treatment must be described clearly
enough so that others can repeat the treatment
to independently determine its effectiveness
in other situation and for other persons.
- Outcomes
are described in terms of actual behavior change,
not testimonials, anecdotes, and the like. Look
for specific, objective outcomes of the treatment;
if you don't see these-ask. The person who is
promoting a supposedly effective treatment should
be able to refer you to empirical, published
studies, judged by reputable scientists, that
impartially address the degree of treatment effectiveness.
Otherwise, you may be relying upon something
that worked for only one person in one situation.
It
is up to you to carefully and critically evaluate
all treatment claims. Ask questions and don't be
intimated because the therapist is a professional.
A true and caring professional will be willing
to answer your questions and should be able to
provide you with the information you need to make
an informed choice. Even after asking questions
and receiving the information you requested you
still may be unable to judge the quality of the
proposed treatment. If the treatment is for a problem
behavior, we suggest that you contact a local chapter
of the Association for Behavior Analysis (see
Behavior
Analysis Organizations for a listing) or
e-mail
us and we will try to put you in contact with
someone in your area.
Suggested
Reading
Green,
G. (1996). Evaluating Claims about Treatments for
Autism.
In C. Maurice, G. Green, and S.C. Luce (Eds.) Behavioral Intervention for Young Children with Autism (pp. 15-28). Austin, TX: Pro-ed. This is an outstanding
chapter
providing detailed information about this topic.
A must read
for anyone interested in how to make sense out of
all the various treatments (applies to populations other than autism
as well). |